Thank you for visiting Doenia Devi. Doenia Devi means « Devi’s World ».
This blog belongs to RA Kanya Varistha Devi Puspokusumo, a.k.a Kanya Puspokusumo.
Kanya Puspokusumo is a writer, translator, and editor. She writes many fictions, poetries, and non-fictions for some media. Her educational background was Japanese language, literature, culture, and philosophy. In 2005, she finished her graduate program (Master Program) majoring Japanese Poetry, Japanese Ancient Language, and Philosophy from the reputable University in Indonesia with a very distinctive result.
She was a Japanese lecturer in a reputable University in Bandung, West Java, Indonesia, before she decided to leave the ‘comfort zone’ and ‘put off’ her job to find the greater challenge. But, it doesn’t mean that she stops teaching. Until now, she keeps sharing her knowledges in some off-line and on-line classes, or in some seminars.
Kanya was born in Javanese (=Indonesian people from Central Java) Royal family. Her father was the descendants of the Sultan (King) Hamengkubuwono of Yogyakarta, Central Java, Indonesia. « RA » in her name is stands for Raden Adjeng, one of royal titles/nobility ranks for female in Central Java. « Puspokusumo » is one of royal family names in Central Java.
Spending her childhood in some countries made her able to speak Indonesian, Sundanese (one of Indonesian local languages), English, Japanese, Korean, and French; and also understand Italian, Dutch and German.
Kanya has a son named Mohammad Rayhan Candraditya Pramesti. Just like his mother, Rayhan can speak several languages too (English, Japanese, and German).
In 2001, she was diagnosed by an autoimmune disease called Multiple Sclerosis (About MS in Indonesian language, click this link ). Multiple Sclerosis (MS) had turned her life upside down and had put her in many severe ‘storms’, such as 5 days coma, got paralyzed and had to use a wheelchair for months. To cure the paralysis, and to learn to manage her disease (until she can walk again and live like healthy people), she had to undergo many awful treatments and therapies in Singapore, Japan and USA for almost a year.
When she came back to Indonesia, she had to accept that living with MS in Indonesia wasn’t easy. At that time, there was very little information about MS in Indonesia. When she told her husband and her friends about the disease for the first time, they often mixed up the name of the disease with osteoporosis or cirrhosis. MS’s unpredictable characteristics also gave her a hard time. She was often ‘accused’ of lying because one moment she seemed so healthy but the next she suddenly seemed so weak. But the hardest time she has ever been through was when some people thought that her disease was contagious. Although she explained continually that MS IS NOT CONTAGIOUS disease, many still excluded her socially. After woke up from coma, everything had got worse; neither her husband nor her friends were willing to stand by her; she was abandoned by them. Not long after she diagnosed by MS, she got divorced.
She was so hurt. But she realized that anger, sadness, and hate bring nothing. Instead of hating those who hurt her so much, she preferred to see the bright side of the suffering. She believes that God will never give her a burden that she can’t carry. She also believes that instead of crying or getting frustrated, it will be better if we face the truth bravely and ‘stand up’ and show other people that although we may experience many struggles in the future, this will never stop us from creating something useful and precious for others.
So, she decided to forgive everyone who had offended her, and let life go on. From that time, she also decided to try very hard to change ‘the atmosphere in Indonesia’ by writing information about MS for use in the media, and dedicated her life to help people with the rare diseases.
In 2008, she founded a national health organization/foundation concerning Multiple Sclerosis in Indonesia, to give some mental and financial support to the person with MS. Joining UN and other international events concerning Multiple Sclerosis/autoimmune diseases, opening the good relationship with international health institutions/organizations, negotiating with government to provide more facilities for people with disability, negotiating with pharmacy companies to reduce the price of (the very expensive) MS medicines, and sharing the up-to-date information about MS to all people in Indonesia are some of her agendas.
And, as a founder and CEO of a national health organization in Indonesia, she is now trusted by some international health organizations to be the speaker and motivator in some health seminars. She is also trusted by some health magazine and book publishers to be their writer, translator, and editor.
Facebook : RA Kanya Puspokusumo