Archive for the Health Category

MSIF Board 2009 – 2011

Posted in Health with tags on October 20, 2009 by Kanya Puspokusumo

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Dewan Internasional Multiple Sclerosis International Federation, periode 2009 – 2011

1.Sarah Phillips-UK,
2. Weyman T. Johnson Jr-USA,
3. Rob Hubbard-Australia,
4. Ed Kangas-USA,
5. Allen O’Connor-Ireland,
6. Alan Thompson-UK,
7. Chris Polman-Netherlands,
8. Mario Battaglia-Italy,
9. Dorothea Pitschnau-Michel-Germany,
10. Siobhan Gilmour-UK,
11. Steve Umin-USA,
12. Louis Maroun-Canada,
13. Charles van der Straten Waillet-Belgium,
14. Peter Kauffeldt-Denmark,
15. Frits Deiters-Netherlands,
16. Dorinda Roos-Netherlands,
17. Pedro Carrascal-Spain,

18. Kanya Puspokusumo-Indonesia,

19. Ali Hijjawi-Palestine,
20. Yves Savoie-Canada,
21. Antonella Moretti-Italy,
22. Joyce Nelson-USA…..

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Multiple Sclerosis, Menyerang Sistem Syaraf

Posted in Health with tags , , , , , , , , , on October 20, 2009 by Kanya Puspokusumo

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(Termuat di Harian Umum Pikiran Rakyat, Bandung, 14 Juni 2009)


Hari Rabu, Tanggal 27 Mei 2009 baru saja berlalu[1]. Di benak saya masih terbayang segala kesibukan yang sangat menyita waktu sehubungan dengan persiapan memperingati Hari MS Sedunia (World MS Day)[2]; diantaranya membicarakan konsep dan pembuatan Film kampanye Hari MS Sedunia melalui internet conference dengan beberapa wakil dari Multiple Sclerosis International Federation (MSIF) dan lembaga nasional MS beberapa negara, mengerjakan setumpuk terjemahan (website dan teks film) dengan waktu pengerjaan yang sempit, dan sebagainya. Continue reading

BOOK REVIEW: MS for DUMMIES (Rosalind Kalb, Ph.D)

Posted in Health with tags , , , , , , on October 20, 2009 by Kanya Puspokusumo

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(Published on MS in Focus Biannnual Magazine, London-UK, 2008)

I have read many books about “How to Deal with MS”, but I have never found a book like MS for Dummies before.

The book was divided into 6 parts (excluding the appendix); which gave us the A to Z about MS and its management. Continue reading

“But You Look So Good!” (How to face the world due to your MS)

Posted in Health with tags , , , , , , on October 20, 2009 by Kanya Puspokusumo

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Dealing with MS is like dealing with the devil. Not only the course of MS which is really unpredictable that gives us a very heavy burden, but also how to manage your emotion facing other people who don’t (or can not) understand what MS is and how MS could really affect us will give a special burden. Continue reading

MSIF PROFILE of THE MONTH MAY 2008

Posted in Health with tags , , , , , , on October 20, 2009 by Kanya Puspokusumo

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Published on Multiple Sclerosis International Federation (MSIF) Website on 2008

and it was translated by MSIF London into French, Italian, Russian, Spanish, and German

 

“Help me with empathy, not sympathy”  [1]

I was born in Bandung, Indonesia on July 3, 1971. I’m a single parent with an 8-year-old son. I like writing very much. I have written several novels, short stories and poems under my secret pen-name. These works were published in some newspapers and magazines, and also on my internet blog. Besides writing, I also play the piano. These two hobbies help me to relieve my stress (I think stress is one of the main triggers for a person with MS suffering a relapse). Continue reading

MS, ALS, MD: APA BEDANYA?

Posted in Health with tags , , , , , on July 20, 2008 by Kanya Puspokusumo

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Beberapa waktu yang lalu sebuah stasiun televisi swasta menyiarkan berita tentang seorang tokoh Partai Demokrasi Indonesia Perjuangan (PDIP) yang meninggal karena ALS. Kemudian penyiar berita tersebut menyebutkan bahwa salah satu komedian kita, Pepeng, pun penderita ALS….

Saya sedikit terkejut dengan pemberitaan tersebut, karena sepanjang pengetahuan saya Pepeng adalah penderita MS, bukan ALS.

Tim pencari berita di stasiun televisi tersebut sepertinya mengalami sebuah ‘kebingungan definisi’ antara ALS dengan MS.
Continue reading

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